A National PFS - UK meeting

I'd like to try and arrange a meeting of the group.  It will involve a lot of planning as we are all spread around the UK (and others elsewhere).  Please vote on the poll to show the area you  live in so we can try and organise somewhere that is accessible for most people....

Website update and patient stories

The website is being revised and I hope it will become easier to read and use.  Please continue mailing in your own "Patient Stories".  I can then easily display them in order to raise awareness of the syndromes, the  path to diagnosis and the way patients cope on a daily basis.

Work is also continuing with contacting national patient and carer organisations to add listings and information about "Periodic Fever Syndromes".

Getting started

Here's the new blog for Periodic Fever Syndrome - UK Support.

Will you help us raise awareness of  Periodic Fever Syndromes and help form a new patient organisation in the UK?

Please complete Poll Question 2. (below left) to tell us what areas you would like to see developed first.
Thank you