The website is being revised and I hope it will become easier to read and use. Please continue mailing in your own "Patient Stories". I can then easily display them in order to raise awareness of the syndromes, the path to diagnosis and the way patients cope on a daily basis.
Work is also continuing with contacting national patient and carer organisations to add listings and information about "Periodic Fever Syndromes".
Tuesday, 22 March 2011
Monday, 14 March 2011
Getting started
Here's the new blog for Periodic Fever Syndrome - UK Support.
Will you help us raise awareness of Periodic Fever Syndromes and help form a new patient organisation in the UK?
Please complete Poll Question 2. (below left) to tell us what areas you would like to see developed first.
Thank you
Will you help us raise awareness of Periodic Fever Syndromes and help form a new patient organisation in the UK?
Please complete Poll Question 2. (below left) to tell us what areas you would like to see developed first.
Thank you
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